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Hello friends!

I love my blog and I’m really grateful to all of you that have been reading and following. I’ve wanted to update this blog for a long time so finally I did! Just to let you know, this blog has relocated and it is now hosted by blogspot. The link is above so check it out when you get a chance.

Thanks! 

Steph

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happy st pattys day

happy st pattys day

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First Complaining Post

Ok, so usually I write about how different I am and how we need to stay positive. 

…Well, I don’t feel positive today and I don’t feel tough. This is the first time in my life where I feel truly ”sick.” I feel out of the loop, like I don’t fit in and I can’t keep up. I want to be able to do things normal people do. Please help me in my moment of weakness. Please forgive me for my thoughts.

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It was a beautiful day. Bright and sunny, with not a cloud in sight as only it could be in Florida, my home state. I sat on the green, diamond patterned bench admiring the beauty of all that around me when I felt a slight squeeze in my left hand, bringing me down to planet Earth.
“Wanna go on space mountain?” asked my husband, his face glistening with a slight sweat but thrilled nonetheless. 
“Sure! Let’s go.” I replied as a flashed him a grin. 
We strolled to the entrance of a very familiar indoor roller coaster without a worry in the world. As we walked through rows of metal line-forming bars the ground got steeper and steeper. We giggled as we quickly passed moving images of suns and stars and planets. As the ground continued to get steeper our pace slowed. Steeper and steeper the floor got, we laughed about how much further it would be. Steeper, ok now, too steep. The pain came and so did my breath as I huffed with the exertion. He soon disappeared behind a corner as he walked the line casually. I grabbed onto the bars just in time. My knees, they weren’t working and the pain was too much to handle. I tried so hard to keep going, to reach the summit, but it hurt. So bad. 
Suddenly, I wasn’t in the dark tunnel, I was in my bedroom, but something was off. Why hadn’t the pain gone? Why were my knees and ankles still hurting as though I had just climbed a steep hill? Oh yeah.. I remember now. This is just another symptom of a very familiar condition. More familiar than the entrance to a popular ride in my husband’s favorite theme park. The thoughts flooded to my mind at the same time the images of what really happened on our vacation to Disney World. I never climbed that steep hill. The exersion wasn’t my own, it was my husband’s as he pushed me in a wheelchair through the rows of metal bars. The only two things that were the same is the pain that’s always there and the happiness we shared that week. 
I smiled as I closed my eyes realizing that even though the pain will always be there, so will the joy and the laughter Andres and I share be. And that, is worth everything in the world to me. 
—Based on true events—

It was a beautiful day. Bright and sunny, with not a cloud in sight as only it could be in Florida, my home state. I sat on the green, diamond patterned bench admiring the beauty of all that around me when I felt a slight squeeze in my left hand, bringing me down to planet Earth.

“Wanna go on space mountain?” asked my husband, his face glistening with a slight sweat but thrilled nonetheless. 

“Sure! Let’s go.” I replied as a flashed him a grin. 

We strolled to the entrance of a very familiar indoor roller coaster without a worry in the world. As we walked through rows of metal line-forming bars the ground got steeper and steeper. We giggled as we quickly passed moving images of suns and stars and planets. As the ground continued to get steeper our pace slowed. Steeper and steeper the floor got, we laughed about how much further it would be. Steeper, ok now, too steep. The pain came and so did my breath as I huffed with the exertion. He soon disappeared behind a corner as he walked the line casually. I grabbed onto the bars just in time. My knees, they weren’t working and the pain was too much to handle. I tried so hard to keep going, to reach the summit, but it hurt. So bad. 

Suddenly, I wasn’t in the dark tunnel, I was in my bedroom, but something was off. Why hadn’t the pain gone? Why were my knees and ankles still hurting as though I had just climbed a steep hill? Oh yeah.. I remember now. This is just another symptom of a very familiar condition. More familiar than the entrance to a popular ride in my husband’s favorite theme park. The thoughts flooded to my mind at the same time the images of what really happened on our vacation to Disney World. I never climbed that steep hill. The exersion wasn’t my own, it was my husband’s as he pushed me in a wheelchair through the rows of metal bars. The only two things that were the same is the pain that’s always there and the happiness we shared that week. 

I smiled as I closed my eyes realizing that even though the pain will always be there, so will the joy and the laughter Andres and I share be. And that, is worth everything in the world to me. 

—Based on true events—

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lilllypop asked: heeey (:!

Heyy what’s up? :)

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I just want to say…

To all of you with parents who don’t understand how your disease affects you, I’m here for you. Feel free to ask me questions. I understand what you’re going through. I know how it feels to care about someone even when they are incapable of holding your hand while You’re scared, hurting, worried-especially when they should. There are so many reasons why its possible they can’t help you.

Let’s talk about it..

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(Source: jac-h, via lilllypop)